http://nothingaboutus-withoutus.tumblr.com/

cut-bleed-relief: My first tattoo! Well that’s...

Mon, 17 Jun 2013 00:10:19 -0400

cut-bleed-relief:

My first tattoo!

Well that’s embarrassing, especially since you tagged this autism speaks.

Autism speaks is a horrible organization, they don’t help autistic people. And the puzzle piece does not represent me.

Hunger can impair communication

Sat, 15 Jun 2013 16:26:44 -0400

realsocialskills:

Some people who can usually use language to communicate lose a lot of their words if they get too hungry.

When you’re hungry, you don’t have as many cognitive resources available, and some of what is available gets taken up by dealing with hunger. For some people, this can mean that the resources needed for language simply aren’t there.

If you’re finding that you often can’t speak well in the middle of the day, it’s possible that you are forgetting to eat. This might be the case even if you don’t feel hungry.

If you get used to not eating properly, it can be hard to notice hunger. If you’re too hungry for too long, sometimes you get used to automatically ignoring the sensations of hunger, which can make them hard to identify.

If you’re experiencing sudden cognitive or communication impairment, and you haven’t eaten recently, it might be a side effect of hunger. Sometimes, if you get too accustomed to the sensations of hunger, you don’t notice feeling hungry until it stops you from thinking well.

If you used to be able to use language reliably but are experiencing seriously diminished ability, it might mean that you haven’t been eating properly for a long time.

Hunger isn’t the only reason some people have intermittent language problems, and it’s not the only reason people lose language skills in a longer-term way. But it’s very common for people with communication disabilities to have dramatically worse communication problems when they are chronically hungry.

If you’re having communication problems that seem to be more severe than you expect, it’s worth checking to see if you’re also having trouble eating enough. And if you are, it’s worth making fixing that a priority.

Yep. My parents used to have to give me some juice right when I woke up when I was little, because I wouldn’t know what I wanted to eat and then being low on blood sugar would make me inconsolable.

Creative Title is Creative: Just stop, seriously

Sat, 15 Jun 2013 03:51:01 -0400

Creative Title is Creative: Just stop, seriously:

neuroatypically-speaking:

unexpectedsoyamilk:

No, you are not severely Autistic, you have Aspergers Syndrome/High Functioning Autism and you’re just using a serious disability as a means to get attention. Grow the fuck up, some people actually have severe/Low Functioning Autism and…

Having a brother who is autistic doesn’t make you an honorary autistic person, nor does it make you any less capable of ableism. This was a horrible post.

expectedly: ‘Reject functioning labels’.

Tue, 11 Jun 2013 04:28:34 -0400

expectedly:

‘Reject functioning labels’.

Autism isn’t terrifying, and doesnt have to be...

Tue, 11 Jun 2013 04:20:00 -0400

Autism isn’t terrifying, and doesnt have to be exasperating if you stop looking at us from an ableist standpoint.

salaamyasalaam: The boy I was working with was Bengali muslim and he was a “normal child” until 4...

Tue, 11 Jun 2013 04:13:21 -0400

salaamyasalaam:

The boy I was working with was Bengali muslim and he was a “normal child” until 4 &1/2 years old and then all of the sudden he became autistic and lost all his cognitive abilities, he’s 17 now.

Which I could not believe and it made no sense. His mom keeps crying about it and she says he used to pray with her and call her when its prayer time. This didn’t make any sense in my mind, seeing the boy and then the boy she tells about, didn’t add up. My mom said there must’ve been something else prior to that. Which makes so much sense.

Unless he has Catatonia, but he is diagnosed as Autistic. This is not possible though. I don’t know.

Autism can start showing symptoms more at certain points in someone’s life, but if he has autism at 17, he had it earlier. You can’t go from non-autistic to autistic like that, you can’t suddenly “become” autistic.

my-chemical-assfucking-romance: why some people self diagnose themselves with mental disorders and...

Tue, 11 Jun 2013 00:33:03 -0400

my-chemical-assfucking-romance:

why some people self diagnose themselves with mental disorders and then tell people they have ‘said disorder’ really fucking confuses me and it’s completely dick like because people who actually have to go to therapists and psychologists for that shit just sit there silently because they don’t want people to think they’re overreacting over something that other people can deal with alone

some people self-diagnose because they CANT go to therapists and/or psychologists. often times they’re not “dealing with it” alone, they’re unhealthy mentally, which is certainly not a best case scenario, but it happens. shitting on people who cannot see a psychiatrist or therapist is gross.

autistickitten: Friend asks how you are. Forget to ask how they...

Tue, 11 Jun 2013 00:18:48 -0400

autistickitten:

Friend asks how you are. Forget to ask how they are.

josiahd: “You must be so high functioning” always comes with an implicit “or else”.

Fri, 07 Jun 2013 19:09:28 -0400

josiahd:

“You must be so high functioning” always comes with an implicit “or else”.

words to use instead of using "bipolar"

Thu, 06 Jun 2013 19:43:55 -0400

drbread:

tuimitchams:

when you’re talking about something or someone changing a lot, but you’re not referring to bipolar disorder or someone with bipolar disorder, please don’t use “bipolar” to describe this. because using “bipolar” when you’re annoyed with the weather or to insult your ex is really shitty.

moody

capricious

erratic

temperamental

volatile

inconsistent

fickle

impulsive

vacillating

mercurial

variable

unpredictable

similar post for words to use instead of “OCD”

Did you know that water is bipolar?
So is the planet earth

And all planets actually

the more you kno

your point?

none of that has to do with people using bipolar to mean “talking about something or someone changing a lot”

the earth isn’t bipolar b/c it changes a lot, it’s bipolar because has a north and south pole.

autistics-speaking: I don’t know what to say to anyone...

Wed, 05 Jun 2013 00:47:11 -0400

autistics-speaking:

I don’t know what to say to anyone anymore.

Submitted by: Anonymous

A journal in melancholia.: Does someone have autism or are they autistic?

Tue, 04 Jun 2013 03:20:24 -0400

A journal in melancholia.: Does someone have autism or are they autistic? :

telephonoscope:

josiahd:

ruffpost:

I have a younger sister with moderate to severe Autism, so I spend a lot of time interacting with the local “Autism community”, consisting of people who actually have the diagnosis, people who are biologically related to someone with the diagnosis, or people who work…

“as the lower functioning ones do not give two flying fucks”

Ah, there it is. The belief that ‘lower functioning’ autistics aren’t able to think or have opinions.

fire by the riverside: Okay so I know there’s a lot of frustration around the whitewashing of...

Sun, 02 Jun 2013 20:51:47 -0400

fire by the riverside: Okay so I know there’s a lot of frustration around the whitewashing of...:

ladysandrilene:

Okay so I know there’s a lot of frustration around the whitewashing of Fire and Brigan and other characters from the Dells, and while I don’t doubt that Fire is a WOC (though I haven’t seen mention of it yet), is Brigan actually described as being a MOC? I’m only about a third of the way through…

Brigan’s a POC yeah, POC can have light eyes. The Pikkians are specifically described as being lighter skinned, and Fire makes a big deal of it, which shows that the Dellians tend to have fairly dark skin as a group. As well, when the group meets up w/ Bitterblue, she says that all of the Dellians there have darker skin. So yes, it’s implied Brigan is a man of color.

stripesweatersandwaterbottles: nothingaboutus-withoutus: get...

Sun, 02 Jun 2013 05:02:01 -0400

stripesweatersandwaterbottles:

nothingaboutus-withoutus:

get your bullshit out of the autism tag you ableist douchefuck

what does that even mean?

who knows? some person calling MRAs autistic.

k this has nothing to do with autism

Sun, 02 Jun 2013 04:46:34 -0400

k this has nothing to do with autism

get your bullshit out of the autism tag you ableist douchefuck

Sun, 02 Jun 2013 04:45:57 -0400

get your bullshit out of the autism tag you ableist douchefuck

alooftile: I can’t fold clothes. I just can’t. It’s something I feel I will never get good at, no...

Sun, 02 Jun 2013 04:42:47 -0400

alooftile:

I can’t fold clothes. I just can’t. It’s something I feel I will never get good at, no matter how hard I try.

my life

autistics-speaking: I really want to write a story with an...

Sat, 01 Jun 2013 14:00:00 -0400

autistics-speaking:

I really want to write a story with an Autistic character but it seems like everyone is notorious for portraying Asperger’s wrong. Every person with Asperger’s is different! Come on!

Submitted by: Anonymous

I feel like if you’re autistic (which I’d assume given that it’s the autistics-speaking blog), you’re more likely to do it decently.

cristaly: Anyone have any suggestions? if you have a twitter...

Sat, 01 Jun 2013 02:52:55 -0400

cristaly:

Anyone have any suggestions?

if you have a twitter feel free to tweet her otherwise message me and I’ll forward it

Try contacting ASAN, they might know what to do?

kelseyalmes13: Hi, if any of you know someone with a mental disability such as aspberger’s syndrome...

Fri, 31 May 2013 21:54:54 -0400

kelseyalmes13:

Hi, if any of you know someone with a mental disability such as aspberger’s syndrome or autism, I need your help! I’m doing my girl scout gold award project to raise awareness of these disabilities. If you would like to share your story, publicly or anonymously, that would help me out so much. Thank you all!

what if we actually have the disability? or do we not get input?